Resources & Support
Access to up-to-date information and peer-support is very important to your recovery. The following is a list of organizations providing information and support on a variety of urological and pelvic pain conditions. There is a much more complete list in the book.
American Urogynecology Society Foundation (AUGS)
Information about pelvic floor disorders (PFD), a treatable medical condition affecting millions of women. An excellent medical resource for a variety of pelvic health disorders.
Interstitial Cystitis Association (ICA)
(800) HELP-ICA or (301) 610-5300
Interstitial Cystitis Network (ICN)
The ICN MD list provides information on MDs, counselors, physical therapists, dieticians, IC specialists by region.
IC Puzzle (support group)
Online support group started by Amrit Willis, RN, author of Solving the Interstitial Cystitis Puzzle. Most participants are interested in a holistic perspective.
International Painful Bladder Foundation (IPBF)
This is a link to a comprehensive list of support groups worldwide in more than thirty countries.
American College of Obstetricians and Gynecologists (ACOG)
The International Pelvic Pain Society (IPPS)
National Kidney and Urological Diseases Information Clearinghouse
Good information source on a variety of urological diseases, including IC.
National Vulvodynia Association (NVA)
This mild herb has a pleasant, sweet taste that makes a flavorful herbal tea. Drinking chamomile tea before a long car ride or restaurant dinner can help prevent the annoying spasms that necessitate frequent trips to the bathroom. But chamomile's relaxing action isn't limited to the urinary tract, so it is not the best herb to use if you suffer from conditions such as gastroesophageal reflex or heartburn.