Resources & Support

Access to up-to-date information and peer-support is very important to your recovery. The following is a list of organizations providing information and support on a variety of urological and pelvic pain conditions. There is a much more complete list in the book.

American Urogynecology Society Foundation (AUGS)
http://www.mypelvichealth.org

Information about pelvic floor disorders (PFD), a treatable medical condition affecting millions of women. An excellent medical resource for a variety of pelvic health disorders.

Interstitial Cystitis Association (ICA)
(800) HELP-ICA or (301) 610-5300
icinfo@ichelp.org
http://www.ichelp.com

Interstitial Cystitis Network (ICN)
http://www.ic-network.com
http://www.ic-network.com/md

The ICN MD list provides information on MDs, counselors, physical therapists, dieticians, IC specialists by region.

IC Puzzle (support group)
http://healthgroups.yahoo.com/group/icpuzzle

Online support group started by Amrit Willis, RN, author of Solving the Interstitial Cystitis Puzzle. Most participants are interested in a holistic perspective.

International Painful Bladder Foundation (IPBF)
http://www.painful-bladder.org

This is a link to a comprehensive list of support groups worldwide in more than thirty countries.

American College of Obstetricians and Gynecologists (ACOG)
http://www.acog.org/publications/patient_education/bp127.cfm

The International Pelvic Pain Society (IPPS)
http://www.pelvicpain.org

National Kidney and Urological Diseases Information Clearinghouse
http://kidney.niddk.nih.gov/kudiseases/pubs/interstitialcystitis

Good information source on a variety of urological diseases, including IC.

National Vulvodynia Association (NVA)
(301) 299-0775
http://www.nva.org